Click on the document that you want to download, there are documents in English and Macedonian:
Magazine “Face to Face”, 2015, Rare Disease Day
– licevlice br. 14 In Macedonian language
– Face to Face in English language
Annual report for 2015:
– Izvestaj od aktivnosti za 2015
Annual report for 2014:
Activites in 2014 – annual report
Finansiski izvestaj od Centralen registar 2014 – Zivot so predizvici – Financial report from Central register for 2014 – in Macedonian
Brochures from the conferences in March, 2014
Brochure – European regulative and recommendations in the field of rare diseases
Nacionalen plan za retki bolesti – broshura – National plan for rare diseases – Macedonian and English
Brochure from Rare Disease Day – 2014
Брошура – Ден на ретки болести Web – Rare Disease Day 2014 in Macedonian, translated from the rare disease day message and EURORDIS brochure princeps_document-EN
Brochures with patient stories
– Brosura – Prikazni na pacienti – Macedonian Version
– Brochure – Patient Stories – English version / Англиски
Membership Application
– Пријава за членство – Macedonian, English and Albanian
Informative brochures for rare diseases in Macedonain
– – Болест на Гоше – Gaucher Disease
– Епидермолисис Булоса – Epydermolysis Bulossa
– Наследна Тирозинемија – Hereditary Tyrosinemia
– Фенилкетонурија – Phenilketonyria
– Хередитарен Ангиоедем – Hereditary Angioedema
– Болеста Помпе – Pompe disease
Laws in R. Macedonia – regarding rare diseases and health
– Програма за лекување на ретки болести во РМ за 2012 година – Македонски
– PROGRAMA ZA LEKUVAWE NA RETKI BOLESTI VO REPUBLIKA MAKEDONIJA ZA 2013 GODINA – Македонски
– ZAKON_ZA_ZDRAVSTVENATA_ZASTITA_PRECISTEN_TEKST, Македонски
Reports and documents of the association
– Activities of Life with Challenges in 2013 – Annual Report 2013
– Official financial report 2013 from central register
– Life with Challenges – report 2012 – Report for 2012, Англиски
– Godisen izvestaj – Zivot so Predizvici – Rerport 2012, Macedonian version
– Статут на Здружението – Macedonian version
– Do not cry fight for your rights – presentation at Gaucher Patient Advisory Meeting at Waterford, Ireland, English
– zavrsna smetka 2011 – 2012 – Financial statement in Macedonian – revenues less than 2500 EUR in 2011 and 2012
