Who are we?
The association of citizens for rare disease “Life With Challenges” is founded by parents and patients who face life with rare diseases in the year 2009.
Information on rare diseases
Here you can read more on rare diseases, what they are, how are they inherited, why is the rare disease registry important and similar information.
Contact
Association of citizens for rare disease “Life With Challenges” Tel – 070 705 446, Email – info@challenges.mk
Brochures
Here you can download different brochures in Macedonian language regarding information on rare diseases, EU regulative on rare diseases, brochures with patient stories, brochures from EURORDIS translated in Macedonian and other information.
Galery
News
Campaign – You are a RARE HERO!
Campaign for raising awareness and improving diagnosis of rare diseases in cooperation with the Association of…
Press conference 13.10.2023
Почитувани, На прес конференција во петок, на 13 октомври, во 11.00 часот, во локалот „15…
International Gaucher Day 2023
This year International Gaucher Day was marked with a focus on diagnosis. We are sharing stories…
Rare disease Day, 28 February 2023 Skopje
Rare Disease Day – February 28, was celebrated on February 28, at “Mala…
Coopertaion
Our team
“We decided that we are not going to keep on living on the margins of our society. We deserve quality life as all the other citizens in Macedonia.
Our mission is to provide better quality of life and treatment for the patients with rare diseases in Macedonia.”
Supporters
