At the poetry race in Struga, on 23rd of May, 2021, some participants were running for equity for rare diseases.
Our volunteers shared informative and educative materials for rare diseases at the event to raise awareness for rare diseases in North Macedonia.
Dear patients and families
Adult patients and parents of children with rare diseases can be vaccinated in Boris Trajkovski in Skopje. They have a list from the register of rare diseases from the Ministry of Health.
To prove you are a patient or a parent you need a document where the disease is mentioned (like a report from the hospital, specialists, genetic test, or other). The document does not have to be new.
Also please have a document for identification.
do not go early in the morning as it is more crowded so please go after 10 in the morning.
Vaccination is not mandatory it is your choice.
More information on COVID 19 and vaccination of rare disease patients can be found on the resource page of EURORDIS on the following link – https://www.eurordis.org/covid19resources