прес

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Прес – медиумски информации / Press – media announcements

Прес од 29.02.2012 – одбележување на Ден на ретки болести – прес конференција

Дневни весници 

  1. http://www.dnevnik.com.mk/default.asp?ItemID=6A2E3A7D78373743942077317D4FDEDB
  2. http://www.denesen.mk/broj66/
  3. http://vecer.com.mk/?ItemID=CF9BD888BBEDEE4AAE6F86A85D53EFA4
  4. http://www.dnevnik.com.mk/default.asp?ItemID=099CEDCB5472FA47A4ABE965ED408DA2
  5. Focus – on line link not available

Национални телевизии 

  1. http://kanal5.com.mk/default.aspx?mId=37&egId=13&eventId=87829
  2. http://vesti.alfa.mk/default.aspx?mId=36&egId=6&eventId=46777
  3. News at 18.30h on Telma- http://telma.com.mk/index.php?task=content&cat=1&rub=6&item=14908
  4. Sitel – News at 15.00h- on line link not available
  5. Sitel – morning show – 8.30h – on line link not available
  6. Alfa – portik – tv show – 10.00-12.00 h. – on line link not available
  7. Local television from Tetovo – on line link not available

Новинска агенција 

  1. http://mia.mk/default.aspx?mId=35&lId=1

Интернет портали / Internet portals

  1. http://24vesti.com.mk/index.php/makedonija/293-makedonija/4774-2012-02-29-15-19-04
  2. http://www.plusinfo.mk/vest/35152/Drzhavata-gi-ostavi-na-cedilo-pacientite-so-retki-bolesti
  3. http://kurir.mk/makedonija/vesti/62626-Alarmantno-Za-deca-so-retki-bolesti-nema-pari-za-terapija
  4. http://press24.mk/story/zdravje/%E2%80%9Ezhivot-so-predizvici%E2%80%9C-bara-terapija-za-site-pacienti-so-retki-bolesti
  5. http://www.sky.mk/makedonija/16355.html?task=view

Живот со предизвици е членка на дледниве организации: (iapo.org.uk), (eurordis.org), (eurogaucher.org), (mds-alliance.org), (www.worldpompe.org), (NARB Makedonija), (apo.org.mk),