Vesna Aleksovska, president of Life With Challenges, this year in October, become a member of the DITA Task Force (Drug Information, Transparency and Access) – EURORDIS.
The first meeting of the group was on 9th of December, 2013, in London.
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International Gaucher Day 2022
8th Scientific Meeting on Rare Diseases in Southeast Europe
Additional third dose vaccine for COVID 19 for rare diseasesPress release from EURORDIS The rare disease community calls for…
- International Gaucher Day
This year we focus on the theme of Early diagnosis,…