|At the end of December, 2018, we organized lectures together with the Red Cross from Gazi Baba, Skopje, in the following schools: VEra Jocikj, Naum Naumovski Borche, DAne KRapchev, Krum Tosev.
They got knowledge and information about how to better help and support families that face life with a rare disease or certain dysfunction.
What we noticed is that in each school there were 1 to 3 people connected to someone with a rare disease. There were a lot of questions and discussion and exchange of contacts so that we can help and support patients and families with rare diseases. We hope to continue this cooperation and have more events on raising awareness on rare diseases.