„HAE Macedonia“ is a patient association for Hereditary Angioedema, and it is founded in 2009. In Macedonia there are around 10 patients diagnosed with this disease, and together they try to cope with the physical and psychical consequences. It is hard to be a parent but it is even more difficult when your child has a rare disease. HAE Macedonia is trying to provide support through different activities, discussions and similar.
HAE MAcedonia started cooperating with Life With Challenges, in 2012. Together patients, parents and supporters are trying to accomplish the mission – providing quality life for patients with rare diseases.
We hope that our cooperation will continue as fruitful as it started with the campaign for raising public awareness about rare diseases.