Why is rare disease register important?
The register for rare diseases is consisted of collected data for all diagnosed cases of people with rare diseases in a population.
The registration is a process of systematic collection and data analysis so that it can provide information on the number of rare diseases and the number of people affected by them.
Карциноми Ретките карциноми се фундаментално различни од честите карциноми „Најмногу…
Ретките заболувања се биолошки различни од вообичаените болести „Студијата за…
Recommendations for patients with rare diseases in CoVid 19 from the Ministry of HealthПрепораки за пациенти со ретки болести во услови на пандемија…
HELPLINE for rare diseases in COVID 19As an active association for rare diseases, we are constantly…
