The first program for rare diseases at the Ministry of health is from the year 2009 and it included 3 patients with MPS 2 – Hunter syndrome
Програма за ретки болести 2009 година – Program for 2009 in Macedonian language
There were no further changes until 2015 .
- Program for 2012 – Програма за лекување на ретки болести во РМ за 2012 година – in Macedonian language
- Program for 2013 – PROGRAMA ZA LEKUVAWE NA RETKI BOLESTI VO REPUBLIKA MAKEDONIJA ZA 2013 GODINA – in Macedonian language
- Program for 20126 – Programa za lekuvanje na retki bolesti vo R.M. za 2016 – in Macedonian language
For the first time in 2016 there are finances for diagnosis and education.