Association of citizens for rare diseases “Life With Challenges“, will join the Skopje Marathon, with a group running under the motto – Running for a better life.
Link to Skopje Marathon page – http://skopskimaraton.com.mk/
Link for participation in the marathon – http://skopskimaraton.com.mk/prijavuvanje/5km/
Note: If you are applying to participate in our group for rare diseases, in the part where it says GROUP, please write TRCAME ZA PODOBAR ZIVOT, that is the name of the group running to raise public awareness about rare diseases.
Also please write to us so we know that you are running in our group and you’ll get a t-shirt with our motto. (firstname.lastname@example.org)
In Macedonia there are over 18 different rare diseases and over 200 patients who live with rare disease. For some of these diseases there is a treatment and for some research is in progress.
Everyone who wants to support us as a participant or sponsor is welcome.
For now we have the support of HAE Macedonia and the Association of Physiotherapists of Macedonia and HEMOLOG.
Let’s raise public awareness about rare diseases in Macedonia together!