The association LIFE WITH CHALLENGES together with Center for psychotherapy NEOCORTEX organized training for psychologists and psychotherapists on the subject – Mental Health – vital in the holistic treatment of people with rare diseases and their families, on the 23rd of November, 2019 in hotel Solun, Skopje.
With this training as a part of the Helpline for rare diseases, we are starting cooperation with more psychologists in North Macedonia in different cities as we want to continue to offer free psychological support for people with rare diseases and their families.
A statement from Vesna Aleksovska, president of LIFE WITH CHALLENGES:
“In our Helpline, a very special part is the free psychological support for families with rare diseases. During 2019 we saw how important this is for patients with rare diseases. The comments that we got from our members is that they are happy not going to the clinic center or the hospital to get this needed support. They were also surprised that their family can also get this support for free as usually, that is not the case. Anonymity is also important. We hope to continue helping people with rare diseases as much as possible. We are happy to be able to support rare disease families and soon we will also share a web page with translated information on many different rare diseases. This is just a small contribution to the improvement of quality of life for people with rare diseases and their families who deserve much more.”
A statement from Ivana Hadzivanova, NEOCORTEX:
“I am thankful for having the opportunity to work with people and families with rare diseases. The positive results made me aware that I need to share this experience with others so that there will be more people with knowledge to help out rare disease families. Prevention and treatment for mental health are vital in the holistic care of people with rare diseases.”
