First National Conference for Rare Diseases in Serbia

First National Conference for Rare Diseases in Serbia

Life With Challenges participated at the First National Conference for rare diseases in Serbia, Belgrade, 5-7 December, 2013 in the organization of the National Organization for Rare Diseases Serbia (NORDS). Vesna Aleksovska, was leading one of the the workshops for Strengthening Patient Leadership together with Vlasta Zmazek (Croatian Alliance fr Rare Diseases), Jelena Milosevik (NORDS), Mira Grujic Brojcin (Association for Epidemolysis Bullossa, DEBRA, Croatia).plakat_konferencija

 

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Живот со предизвици е членка на дледниве организации: (iapo.org.uk), (eurordis.org), (eurogaucher.org), (mds-alliance.org), (www.worldpompe.org), (NARB Makedonija), (apo.org.mk),