The association of citizens for rare disease “Life With Challenges” is founded by parents and patients who face life with rare diseases in the year 2009.
Here you can read more on rare diseases, what they are, how are they inherited, why is the rare disease registry important and similar information.
Association of citizens for rare disease “Life With Challenges” Boris Radosavlevik – Goce, 12, Bitola, Tel – 070 705 446, Email – firstname.lastname@example.org
Here you can download different brochures in Macedonian language regarding information on rare diseases, EU regulative on rare diseases, brochures with patient stories, brochures from EURORDIS translated in Macedonian and other information.
“We decided that we are not going to keep on living on the margins of our society. We deserve quality life as all the other citizens in Macedonia.
Our mission is to provide better quality of life and treatment for the patients with rare diseases in Macedonia.”