At the Macedonian Academy of Science and Art on 16th of November, 2013, Life With Challenges participated in the Congress for Rare Diseases of South-East Europe, in organisation of the Research Center for genetic engineering and biotechnology "G.D. Efremov". Patrons of the congress were the European Academy of pediatrics, MASA and the Doctor Chamber of
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The Association of Citizens for Rare Diseases Life With Challenges, participated in the International Summit of Health Grouper, on 7th of December, 2013. We discussed the question on rare disease treatment with the national and international present experts and we accomplished a short meeting with the Minister of Health Mr. Nikola Todorov, with aim to
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Dear members and supporters,
Life With Challenges is already planning the Rare Disease Day, 28th of February, 2014.
On 28th of February, organize a press conference for media - discussion with patients/families/doctors/ health institutions under the motto of the Rare Disease Day 2014 - let’s Join Together for Better Care!, as we are in preparation of the National Strategy
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TO THE TOP FOR BETTER LIFE!Climbing Great Korab in the name of rare disease patients
On 7th of September, on Saturday, at 12.00h., in hotel VIP, Skopje, we organized a meeting between the National Alliance for Rare Diseases from Bulgaria and the Association of citizens for rare diseases “Life With Challenges”. The representatives from Bulgaria –
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Dear members and supporters,
The Association of citizens for rare diseases "Life with Challenges", this year will climb the top Great Korab on 8th of September, in organization of the Mountain Climbing Club Korab from Skopje.
If you are interested in this challenge please join us and clim Great Korab in the name of the patients with
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Dear Members and Supporters,
The Association of citizens for rare diseases Life With Challenges in cooperation with the Bulgarian National Alliance for Rare Diseases is organizing a meeting of patients with rare diseases.
The meeting will be held on 7th September, at 12.00 in Skopje, Hotel Vip.
Subjects of discussion:
Cooperation and supportSharing experience about treatment and quality of
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