Dear collaborators,The Association of citizens for rare diseases “Life With Challenges”, invites you to the “First CEI Conference for building regional network of organizations for Rare Diseases”, on 23rd – 24th of March, 2014 in Skopje, R. Macedonia.First CEI Conference for building regional network of organizations for Rare Diseases is a project that will contribute
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Dear members and supporters, Life With Challenges is already  planning the Rare Disease Day, 28th of February, 2014.On 28th of February,  organize a press conference for media - discussion with patients/families/doctors/ health institutions under the motto of the Rare Disease Day 2014 - let’s Join Together for Better Care!, as we are in preparation of the National Strategy
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PRESS RELEASEConference on creating National alliance for rare diseases of R. Macedonia22 March (Saturday) 2014 hotel “Porta”, Skopje, R. MacedoniaThe rare disease citizen association “Life with Challenges”-Bitola together with The Association for Hemophilia, rare coagulopathies  and Von Willebrand- HEMOLOG and the Association for Emancipation, Solidarity and Equality of Women of Republic of Macedonia- ESE oranised
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PRESS RELEASEFirst CEI Conference on building Regional Network of Rare Disease Organisations23-24 March, Sunday-Monday, 2014, Hotel Porta,Skopje, R. MacedoniaThe Rare Disease Citizen Association “Life with Challenges” has held the First CEI Conference on building regional network of Rare Diseases Organisations, on 23-24 March, 2014 in Skopje R. Macedonia.This conference is a project that has brought
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  “Conference for establishing National Alliance for Rare Diseases of R. Macedonia“, on 22nd of March, 2014 in Skopje, MacedoniaAgenda22nd of March, 2014, Hotel Porta, Skopje, R. Macedonia09:30 – 11:00 h.Opening of the conference – media statementsBorjan Pavlovski, Coordinator of the program for Public Health and women’s health at the Association for Emancipation, Solidarity and
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