The Association of citizens for rare diseases Life With Challenges is continuing with the tradition to run at the Skopje Marathon in 2015. On 10th of May, 60 participants from Skopje Night Running will run for Life With Challenges. This activity is for raising public awareness regarding rare diseases in Macedonia and about the challenges that people
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The association of citizens HAE Macedonia organized a concert at the city park to mark the HAE world day on 18th of May. At the concert there were a lot of performers as: Zlata Meglenska, Natalija Slaveva, Angelina Stojanovska, Igor Uzunov, Anja Veterova, EUREKA, Sara Markoska, Nade Talevska, Bojana Atanasovska, Aleksandar Belov, Kulturno Umetnicki Rabotnici,
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The European healthcare landscape is a dynamic, innovative ecosystem. Industry is increasingly identifying new approaches, solutions and business models that adapt to both mature and emerging growth markets. The pace of innovation is relentless, the potential benefits for society many. At the same time, this is a highly regulated industry, working to the highest possible standards
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The Gaucher Expert Summit is an international meeting which brings together, from around the world, healthcare professionals involved in the treatment and management of patients with Gaucher disease with the focus of “Driving Excellence in Patient Care”. This educational event provides an opportunity to meet with other Gaucher physicians and to exchange views on best practice
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The Association of citizens for rare diseases Life With Challenges in cooperation with the preschool Detska Radost Skopje, begin a series of lectures on the subject of rare diseases and special needs under the project called - Life is a puzzle, let's collect it together for the children joy. We are thankful that the municipality
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The GLF is a scientific meeting sponsored by Genzyme that brings together approximately 200 participants from around the world, including physicians, academics, researchers and patient organization representatives to discuss current care for patients with Gaucher disease and the direction of future disease management. This year’s GLF will be chaired by Timothy M. Cox, Professor of
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