The Association of citizens for rare diseases LIFE WITH CHALLENGES is continuing the tradition of climbing the highest mountain top in Macedonia - Golem Korab in 2015.For 8th of September, the Independence day of R. Macedonia, traditionally the Association Korab  organized the Climbing of Golem Kkorab, the highest mountain top in Macedonia. The flag of
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This exhibition was prepared for Rare Disease Day, 2015, from the platform for activism "Lice v Lice", in cooperation with "Holistic", the Association of citizens for rare diseases Life With Challenges and the National Alliance for Rare Diseases of R. Macedonia.Ognen Janeski and Azemina Kurtishi“Rocketing”Azemina is the first patient with a diagnosed rare disease Gaucher
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The Association of citizens for rare diseases Life With Challenges is continuing with the tradition to run at the Skopje Marathon in 2015.On 10th of May, 60 participants from Skopje Night Running will run for Life With Challenges.This activity is for raising public awareness regarding rare diseases in Macedonia and about the challenges that people
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The association of citizens HAE Macedonia organized a concert at the city park to mark the HAE world day on 18th of May. At the concert there were a lot of performers as: Zlata Meglenska, Natalija Slaveva, Angelina Stojanovska, Igor Uzunov, Anja Veterova, EUREKA, Sara Markoska, Nade Talevska, Bojana Atanasovska, Aleksandar Belov, Kulturno Umetnicki Rabotnici,
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The European healthcare landscape is a dynamic, innovative ecosystem. Industry is increasingly identifying new approaches, solutions and business models that adapt to both mature and emerging growth markets. The pace of innovation is relentless, the potential benefits for society many.At the same time, this is a highly regulated industry, working to the highest possible standards
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The Gaucher Expert Summit is an international meeting which brings together, from around the world, healthcare professionals involved in the treatment and management of patients with Gaucher disease with the focus of “Driving Excellence in Patient Care”.This educational event provides an opportunity to meet with other Gaucher physicians and to exchange views on best practice
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