The Macedonian Academy for science and art had the opportunity to organize the fifth meeting of SEE for rare diseases, on 12th November, 2016.In the organizational committee of this meeting are: Momir Polenakovic, President, Zoran Gucev, Secretary, Nada Pop-Jordanova, Ilija Filipche, Zivko Popov, Velibor Tasic,Aspazija Sofijanova, Vesna Aleksovska, Dijana Plaseska KaranfilskaThe program was as it
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For the 15th time, the members of the Dicing centre Amfora, and the Club for under water activities Ohrid, in cooperation with the Alliance for under water activities of Macedonia, decorated the Christmas tree under water in Ohrid lake, Macedonia. Traditionally as every year they decorated the tree in the lake at the Bay of
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Last year a member of the association for rare diseases Life with challenges, a mother with a child with Alport syndrome, Gordana Loleska, employed in the post office in Ohrid, started an initiative for creating a postal stamp with the logo of rare disease day to help in raising awareness for rare diseases in Macedonia.
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The association of citizens for rare diseases LIFE WITH CHALLENGES continues with the tradition to participate on Skopje Marathon. This year the association Moment Plus from Gevgelija is also participating in the marathon.On 8th of May, 2016, 60 participants from Skopje Night Running will run for Life With Challenges on 21 and 42 kilometers, and
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On the occasion of the World Rare Disease Day 2016, the National Alliance of Rare Diseases of Macedonia organized an event to mark the occasion on 29 February (Modnay) in the cinema Frosina- MKC. In the course of the Friday, Saturday and Sunday prior to the 29th , events were as well organized in Ohrid,
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On 24.09.2015 at Kinoteka - Macedonia, we opened the First travelling regional exhibition of photos with subject - lysosomal storage diseases. This exhibition shows life of patients and their families from Croatia, Serbia, Macedonia and Bosnia and Herzegovina. Lysosomal storage diseases are group of rare diseases that is consisted from more than 45 hereditary metabolic
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