PROGRAM FOR TREATMENT OF RARE DISEASES FOR 2009 IN R. MACEDONIA
Rare or orphan diseases are diseases who appear in 5 cases in 100 000 population. The small number of cases with rare diseases is a limited circumstance for the pharmaceutical industry to undertake further research for these diseases. Although from every rare disease for now
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Respected members, colleagues and supporters,
Our Report for 2013 is available in a form of presentation at the following links:
http://prezi.com/hvjgsgvnvzpo/life-with-challenges-annual-report-2013/?utm_campaign=share&utm_medium=copy
http://prezi.com/j4ksztnlfvax/life-with-challenges-cooperation-2013/?utm_campaign=share&utm_medium=copy
We wish you happy holidays,
Executive Board of Life With Challenges
Financial help from the Ministry of Labor and social policy http://www.mtsp.gov.mk/?ItemID=35627DB6D7CF734498CCF9743B34B99FChild with specific needs and disabilities regarding this law is a child with:
- difficult, more difficult, the most difficult physical disabilities;
- moderate, difficult or deep mental disability;
- most difficult forms of chronic illness;
- very high degree of impaired vision, hearing or speech (blind person or
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The first program for rare diseases at the Ministry of health is from the year 2009 and it included 3 patients with MPS 2 - Hunter syndrome
Програма за ретки болести 2009 година - Program for 2009 in Macedonian language
There were no further changes until 2015 .
Program for 2012 - Програма за лекување на ретки болести во
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