Meeting of Bulgarian and Macedonian rare disease patients

Meeting of Bulgarian and Macedonian rare disease patients

Dear Members and Supporters,

The Association of citizens for rare diseases Life With Challenges in cooperation with the Bulgarian National Alliance for Rare Diseases is organizing a meeting of patients with rare diseases.

The meeting will be held on 7th September, at 12.00 in Skopje, Hotel Vip.

Subjects of discussion:

  1. Cooperation and support
  2. Sharing experience about treatment and quality of life of patients
  3. Mutual activities
  4. Climbing the Mountain Top Korab, on Sunday, 8th of September.
  5. Possibilities for support and cooperation
  6. Questions

Interested participants can confirm presence on e-mail: zivotsopredizvici@gmail.com, info@challenges.mk

NAPRD-BG

Thank you for your attention

Vesna Aleksovska,

President of the association

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Живот со предизвици е членка на дледниве организации: (iapo.org.uk), (eurordis.org), (eurogaucher.org), (mds-alliance.org), (www.worldpompe.org), (NARB Makedonija), (apo.org.mk),