News
- Lectures on rare diseases with Red Cross Gazi Baba
At the end of December, 2018, we organized lectures together…
News in the HELP LINE for families with rare diseasesIt is a pleasure to inform everyone that starting…
International Gaucher Day – MacedoniaInternational Gaucher Day will be marked at the end of…
Alport Syndrome Balkan Meeting, Ohrid, 29th of August – 1st of SeptemberThe citizen association for rare diseases “Life with Challenges” organizes…